Fédération mondiale de l'hémophilie
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14 signaux
WBDR investigators gather at Congress to strengthen global collaboration
<p>Healthcare professionals from hemophilia treatment centres (HTCs) around the world came together during the WFH 2026 World Congress in Kuala Lumpur for the World Bleeding Disorders Registry (WBDR) Investigators Meeting, held on April 20, 2026. Organized as an informal lunch discussion by the WBDR team, the meeting provided a valuable opportunity for participants to exchange experiences and discuss the challenges and successes associated with registry participation.</p> <p>The post <a href="https://wfh.org/article/wbdr-investigators-gather-at-congress-to-strengthen-global-collaboration/">WBDR investigators gather at Congress to strengthen global collaboration</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
WFH 2025 Twins of the Year announced
<p>The World Federation of Hemophilia (WFH) is pleased to announce the 2025 Twins of the Year! The 2025 Hemophilia Organization Twinning (HOT) Program Twins of the Year are the Haemophilia Association of Mauritius and the Hemophilia Federation (India). The 2025 Hemophilia Treatment Centre Twinning (HTC) Program Twins of the Year are the Instituto Hematológico Pediátrico Dra Victória do Espírito Santo, Luanda, Angola and the IHTC Campinas, Hemocentro UNICAMP, University of Campinas (Brazil).</p> <p>The post <a href="https://wfh.org/article/wfh-2025-twins-of-the-year-announced/">WFH 2025 Twins of the Year announced</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Mastering logistics to deliver humanitarian aid where it’s needed
<p>The World Federation of Hemophilia (WFH) Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support to emerging countries. This support comes in the form of donated factor and non-factor replacement therapy, training, and education. The process of delivering donated product in the fastest, most reliable, and most efficient way possible is a key challenge for the Program, and one it consistently meets day after day, year after year. In this article, we cover the steps involved in delivering humanitarian aid—a practice that is often invisible to the recipient, but essential to the WFH vision of Treatment for All. </p> <p>The post <a href="https://wfh.org/article/mastering-logistics-to-deliver-humanitarian-aid-where-its-needed/">Mastering logistics to deliver humanitarian aid where it’s needed</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
79th World Health Assembly adopts historic resolution on hemophilia and other bleeding disorders
<p>On May 21, 2026, the 79th World Health Assembly (WHA) unanimously adopted a resolution on Global Action to Advance Health Equity for People with Hemophilia and Other Bleeding Disorders. This is a historic development for our community and will contribute to increasing the diagnosis and level of care for people with inherited bleeding disorders around the world.</p> <p>The post <a href="https://wfh.org/article/79th-world-health-assembly-adopts-historic-resolution-on-hemophilia-and-other-bleeding-disorders/">79th World Health Assembly adopts historic resolution on hemophilia and other bleeding disorders</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Article published on hemophilia care in India using WBDR data
<p>A multicentre collaboration among investigators in India used data from the World Bleeding Disorders Registry (WBDR) for an analysis and published their findings in Haemophilia, the official journal of the WFH.</p> <p>The post <a href="https://wfh.org/article/article-published-on-hemophilia-care-in-india-using-wbdr-data/">Article published on hemophilia care in India using WBDR data</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Cédric Hermans, new WFH Vice President, Medical, calls for global mobilization in service of people with bleeding disorders
<p>The World Federation of Hemophilia (WFH) announced the election of Cédric Hermans, MD, PhD, as Vice President, Medical during the WFH 2026 World Congress in Kuala Lumpur, Malaysia. A clinical hematologist based in Brussels, Belgium, Hermans succeeds Glenn Pierce, MD, PhD, who held the role for eight years. He joins a distinguished line of international leaders who have significantly transformed the WFH’s activities. Hermans will have a mandate to further the work of the federation and increase support for the global inherited bleeding disorders community.</p> <p>The post <a href="https://wfh.org/article/cedric-hermans-new-wfh-vice-president-medical-calls-for-global-mobilization-in-service-of-people-with-bleeding-disorders/">Cédric Hermans, new WFH Vice President, Medical, calls for global mobilization in service of people with bleeding disorders</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Meet the WFH 2026 Board of Directors electees
<p>At the World Federation of Hemophilia (WFH) 2026 Annual Meeting of the General Assembly in April 2026, new members were elected to the Board of Directors, including to the position of Vice President, Medical, and Vice President, Finance. </p> <p>The post <a href="https://wfh.org/article/meet-the-wfh-2026-board-of-directors-electees/">Meet the WFH 2026 Board of Directors electees</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Cedric Hermans, MD, PhD, elected to board of directors as Vice President, Medical
<p>The World Federation of Hemophilia (WFH) is very pleased to announce that Cedric Hermans, MD, PhD, was elected as Vice President, Medical, during the WFH Annual Meeting of the General Assembly at the WFH 2026 World Congress on April 19, 2026.</p> <p>The post <a href="https://wfh.org/article/cedric-hermans-md-phd-elected-to-board-of-directors-as-vice-president-medical/">Cedric Hermans, MD, PhD, elected to board of directors as Vice President, Medical</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Carlos Safadi Márquez elected to board of directors as Vice President, Finance
<p>The World Federation of Hemophilia (WFH) is very pleased to announce that Carlos Safadi Márquez was elected as Vice President, Finance, during the WFH Annual Meeting of the General Assembly at the WFH 2026 World Congress on April 19, 2026.</p> <p>The post <a href="https://wfh.org/article/carlos-safadi-marquez-elected-to-board-of-directors-as-vice-president-finance/">Carlos Safadi Márquez elected to board of directors as Vice President, Finance</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Emna Gouider, MD, elected to board of directors as Medical Member
<p>The World Federation of Hemophilia (WFH) is very pleased to announce that Emna Gouider, MD, was elected as a Medical Member during the WFH Annual Meeting of the General Assembly at the WFH 2026 World Congress on April 19, 2026.</p> <p>The post <a href="https://wfh.org/article/emna-gouider-md-elected-to-board-of-directors-as-medical-member/">Emna Gouider, MD, elected to board of directors as Medical Member</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Maria Elisa Mancuso, MD, elected to board of directors as Medical Member
<p>The World Federation of Hemophilia (WFH) is very pleased to announce that Maria Elisa Mancuso, MD, was elected as a Medical Member during the WFH Annual Meeting of the General Assembly at the WFH 2026 World Congress on April 19, 2026.</p> <p>The post <a href="https://wfh.org/article/maria-elisa-mancuso-md-elected-to-board-of-directors-as-medical-member/">Maria Elisa Mancuso, MD, elected to board of directors as Medical Member</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Marko Marinic elected to board of directors as Lay Member
<p>The World Federation of Hemophilia (WFH) is very pleased to announce that Marko Marinic was re-elected as a Lay Member during the WFH Annual Meeting of the General Assembly at the WFH 2026 World Congress on April 19, 2026.</p> <p>The post <a href="https://wfh.org/article/marko-marinic-elected-to-board-of-directors-as-lay-member/">Marko Marinic elected to board of directors as Lay Member</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Bradley Rayner elected to board of directors as Lay Member
<p>The World Federation of Hemophilia (WFH) is very pleased to announce that Bradley Rayner was elected as a Lay Member, during the WFH Annual Meeting of the General Assembly at the WFH 2026 World Congress on April 19, 2026.</p> <p>The post <a href="https://wfh.org/article/bradley-rayner-elected-to-board-of-directors-as-lay-member/">Bradley Rayner elected to board of directors as Lay Member</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
Non-factor replacement therapy is a life-changer for youth from Barbados
<p>Rhōnan Boyce from Barbados was six months old when his parents first noticed a large bruise on his arm. Like many parents, they expected the doctors to prescribe medication and reassure them that everything would be fine. Sadly, the bruise proved to be caused by hemophilia. The next decade of the boy’s life was one of acute bleeds, frequent treatments and interrupted studies—until non-factor replacement therapy provided by the World Federation of Hemophilia (WFH) completely changed his life.</p> <p>The post <a href="https://wfh.org/article/non-factor-replacement-therapy-is-a-life-changer-for-youth-from-barbados/">Non-factor replacement therapy is a life-changer for youth from Barbados</a> appeared first on <a href="https://wfh.org">World Federation of Hemophilia</a>.</p>
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